So yea, uhmmm... Dylan rocks.

Dylan and Mike rocked her PT session the other day. It was unbelievable. Especially after how poorly her last session was (It was in the afternoon and she was NOT having it, lesson learned.) Remind me to tell you about "Michael Potter" ...maybe that had something to do with it? Whatever it was, she did AMAZING.

All of this from someone who's not supposed to walk? Go girl!

She hasn't yet taken any spontaneous steps, but man she's close. She HAS to be close. Lots of videos below.

I forgot to mention that we haven't seen any more spasms since we upped her Zonegran, so that's good. Bad of me not to mention that since it's been nearly two weeks! Sorry about that... I know that she has been in many of your thoughts.

She hasn't been feeling well the last couple of days, all of the kids have a bad cough and I was wondering how she managed to escape it, well... she didn't. So she coughs and gags and then throws up. Darn it! Just after she has started to fill out a little bit. So we will be battling this (for a long time judging by the boys...) and trying to keep food in her. At least we have the pump though, it's been so helpful in making sure she doesn't skip feedings. Now I can time feedings as well. I went in this morning and slowly gave her a couple ounces with her meds and set the pump at an ounce and a half an hour until she wakes up. It's a bit of a guessing game as to when she needs food, but all is well as long as we err on the side of too much!

Remember the car that Aunt Jane and Uncle Dee brought Duncan? Well, daddy got a hold of it and gave it a make-over. He thought it would be a fun little project to paint it so he took the body and the seat off and made it look brand new. Uncle Dee made it run like brand new, daddy made it look it. A great team! It's been so rainy this week that I didn't get any pictures of Duncan on it... coming soon!

I also forgot to mention the train story... Papa Bob and Grandma were over the other night for games and Duncan wanted to show Papa the big trains. Matthew's dad had quite a few trains that they would set up around Christmas, gradually Matthew and Duncan collected a good portion of them and they hang out down stairs and run around the pool table. (I have been trying to send them home, or a good portion of them anyway, but this kid LOVES trains and daddy's a sucker!)

Duncan's very careful with them...

So he and Papa Bob went down to look at the trains. Bob asked if they ran and reached to turn them on, Duncan told him not to... and proceeded to UNPLUG the control from the wall! I guess Papa Bob couldn't be trusted?!

So I asked him later "Did you and Papa Bob go see the trains?"

"Yep"

"Did you play with them or just look at them?"

"Just look at them"

"What if Papa Bob wanted to play with them?"

"He can't play with them, maybe someday, maybe when he's as big as my dad he can play with them."

Little stinker, he unplugged them!

Ian has a bruise smack dab in the middle of his forehead. No, he didn't fall or run into anything, what he did do was bonk his head into pretty much anything and everything. It's how he pouts, he throws himself on the ground or into a wall and bonks his head. Hard. And now it's bruised. Really, if we say, just a minute he will run away, arms flailing and BONK! And then we say, "here, Ian, look!" and hold something out he immediately starts laughing and smiling running towards us. The head bonking gets him no where.

And with no further ado...

The best one first!


She was turning mid-walk part of the day, redirecting and catching herself.
Thsi time she didn't catch herself, but you get the idea...


She does it a little in this one though...


This is a very smooth walk, with practical use since she stops, and then continues on.


Again - After doing it just once she even got better.


One more little one...