I started this post a couple of days ago but my loving, wonderful, amazing husband was off work the last couple of days to help me with all of the appointments and he tends to stay up late playing silly boy games on his computer. He didn't set my computer back up for me to do pictures so alas, one whole week between posts! Blech! Anyway... Dylan got her walker this week, her Gait Trainer. It's pretty cute, little tiny, but heavier than she is! It's green, kind of an uglier green than we expected but the only other option was blue, so green it is. I need to borrow my mom's bejeweler and deck it out. I am not sure where we go from here though. Mike will come over for another consult and the PT at the school asked me to bring it to school with her, more on that in a second.
I took Ian to his 9 month well-baby check and he's short ad fat! He's only in the tenth percentile for height and weight for height is in the 50th! He's 18.8 lbs and 27 inches tall. He also cut tooth #5 on Wednesday, on the top right and his working on the match set. He's woken up a couple times in the night (or... rather Dylan's woken him and he hasn't gone back to sleep. Turkey.) We've had a few very long nights for everyone but Duncan who has slept through it all and popped up bright and early as usual.
I went to the OB on Friday and again the doctor tried to get a peek at parts he shouldn't be looking at. I stopped him, again. So funny! I did get to see the baby though, both arms were up against the sides of it's head looking really cute. No heart rate this time though. We scheduled our ultrasound for the end of the month, mama LouAnn will have all three kiddos!
We took Duncan and Dylan to the dentist Wednesday for the first time ever. I think the dentist was like... 9. He was really super nice, but so young! Funny! Dylan cooperated while they did pictures or her teeth but that's about it. She was not having a cleaning/polishing so they just brushed with fluoride and sent her on her way. Her first x-ray of the top didn't show her permanent teeth so they re-took it for me to see what they would look like. They are pretty funny looking. She will have single central incisor (some HPE kiddos do when they are kids, but not their adult teeth) and her teeth are pretty rounded. Though, not as pointy as her teeth now, rounded just the same. The central incisor is about in proportion with the other teeth as her baby incisor is.
He did say that tube fed kids have more build up and they 'make them sleepy' to clean them but they don't usually do it until it gets pretty bad. He said if we notice some staining not to worry about it... it's normal. Try to keep brushing her teeth because they really look good now. I have not been so good with her brushing, she HATES it, and they look good? Egads, I lucked out right? I better get brushing!!
Duncan was fabulous! I think we benefit from Dylan's doctor visits. I always tell him "Dylan's going to see the doctor" and he said "My see doctor too?" and I say yes, because... well, he will see them. However, he's not really in on the action right? With the dentist he was so great! He let them do everything they needed to do, clean and 'count' his teeth. His adult teeth are GOOFY, Matthew said they are his. They are big and look awkward right now. It was kind of fun to see them. He has a little chip on his front tooth which the doctor said is quite normal for active boys and no big deal.
We took Dylan back to the doctor to make sure her Bladder infection is gone. It looks like it is... nothing cultured out, but I have my suspicions. We are going to try and push a lot of water in the next couple of days and see if maybe her not getting enough liquid is adding to the problem.
I also took my car in to get the claim rolling on my little fender bender and, I think I had the course of events a little incorrect. I thought she was stopped and started going and ran in to me, turns out, she probably wasn't ever stopped! Her insurance only allows the initial claim to include what they can see and the bumper is smashed over the tailgate so they couldn't assess the internal damage. As for now, it's about $1500 BUT... she was going fast enough that the steel reinforcements for the bumper are bent down about 3-4 inches (down because she probably was braking fast as she hit me). They expect more damage and possibly even frame damage. Okay, so I guess I got nailed then! Who knew? The final tally will probably come in closer to $3500. Yowza! Fortunately I get another van while they work on it, starting next week. Still boo, but good that that ball's rolling I suppose. I do NOT like that gals insurance agency, shouldn't everyone be treated as a potential customer? They have been rather rude... so, all my 4 loyal readers, boo to State Farm!
And on to Dylan's school evaluation - I went in on Friday for Dylan's school evaluation. Basically a BUNCH of people, her team, all sat on mini-chairs around a mini-table and talked about what she can do. It didn't take long before several of them dodged the table and went right on the floor with Dylan so see what exactly she is capable of. It was AMAZING. I loved them. Here I have built myself back up to being scared of the IEP again and then I go in and I have been reassured that she's in the right hands!
I spent a lot of time with the Physical Therapist, the Vision Therapist and the Occupational Therapist as well as her over all care coordinator and we talked about the things that they can work on. Boy, they hit everything that we have been working on right on the head!! They nailed it.
- They realized very quickly that music is a motivator for her and that will work better than treats for rewards. (Just like we used to do for feeding!)
- She already got a piece of chewelry, a squiggly necklace that she will hopefully like enough to put in her mouth rather than, well... everything else.
- They will start by giving her choices of things, then start associating pictures with the things and having her make choice of pictures. This is great because there's numerous iPad programs that will allow you to upload your own pictures to provide choices for non-verbal kiddos.
- I am supposed to try a hat with a brim for the outside play times. She HATES the sun and we are hoping that will help.
- They will work on having her play in a peer group. Recognize that the group is all doing one thing and have her go along with it, rather than doing her own thing.
- Attending to activities for a period of time.
- Turn taking with others.
- Recognizing her name when she's in a group of people. I think she 'gets' her name, but we are the only ones here... so try it when there are more people around to see if it's us speaking that gets her attention or her name.
- Clapping, with people, with music.
- Working on having her recognize when we tell her she's not supposed to have something. She said plant some things she should have next to things she should and work on redirecting so she learns no.
Speaking of which, she was headed to take a toy away from Ian the other day and I put my arm in front of her and said "No, that's Ian's, you go find something else!" and she pulled her hand back, looked at me, and moved on. She listened to me!
These things will be converted to goals and written on her IEP when we meet again on the 8th but over all I was very encouraged that they could spend just a short amount of time with her and come up with such good, relevant, goals!
Also - Another sign that they really do have her best interest in mind - She told me they were able to get both Duncan and Dylan into a morning class! Originally I told her Dylan's better in the morning but, because there was no room in the morning classes for Duncan we had to go to the afternoon class. (Dylan can have whatever class she wants! It was getting Duncan in that was the trick.) Apparently they had a cancellation and she said she immediately thought of Dylan! It was so thoughtful for her to think of us even though it had been a few months and it would have been easier just to go with what the plan was. Every time I meet them I am just a little more convinced that they like the busted ones more than the non-busted ones! Granted, I haven't seen them in action with the non-busted ones, but to get that impression? I just think she will be in such good hands! Yay!
Because of the picture and choice conversation I mentioned the iPad and that's where we intend to go with it. They had me pull it out so they could see it, and Dylan with it, in action and they were very impressed! With both! The possibilities with the iPad are amazing, they really do need one in each school to work with the kids, even for a short amount of time. They talked about getting grants and donations to save up for one.
So that's it for this week, lots of appointments!
My boys couldn't make cute faces in the same picture...

So you get two pictures of them!

The view from my porch the other night, it was gorgeous. I love having "country views" across the street. Its smells so nice... most of the time. There are usually just three horses but for the last couple of weeks there's been only two horses and three cows. The cows like to try and stare us down when we are out front.

Who me? Duncan's got this new thing "Ian play trains with me?" And I bring Ian in Duncan's room where Ian plays on the floor and Duncan plays with his trains. It's so cute, and the beginning of something GREAT!

Cute bald baby!